My Symptoms
Every Day:
- Tinnitus
- Tachycardia upon standing
- Nausea
- Cold sweats
- Trouble regulating temperature
- Head pressure (not sinus pressure, it's as if my brain is swelling)
- Shortness of breath
- Episodes of muscle weakness
- Bloodshot eyes (tissue around eye is also red)
Every Now and Then:
- Tingling cheeks
- Dry Mouth
- Earache/burning
- Lump in throat
- Sensation of needing to concentrate to breath
- Cramps in calves
- Overfull feeling (usually occurs 2 hours after eating)
- Sore throat (only hurts when swallowing and will last for two days then come back 5 days later like clockwork)
- Swollen tongue
- Twitching (especially in toes and fingers)
- Burning muscles (as if I've been working out for an hour)
During "Episodes":
- Flushed, hot face
- Chest pain
- Shaking/Trembling (especially in legs)
- Tachycardia
- Episodes almost always result in a bowel movement
- Muscles tense or flex
- Tingling (arms, legs, groin)
- Nausea (sometimes vomit)
- Extreme cold sweats
- High Blood Pressure (It normally runs low)
My symptoms are so similar to yours. You are the first person that I see like me. The blood shot eyes are one that no one has understood. But my episodes are very similar. I have talked to you on dinet, but until I read this I didn't realize how a like we are! Except for the fact, you are younger me and believe me when you get into your forties the fight to hide grey hair even with hair dye is a challenge. I keep blaming this on this disorder! lol Keep writing your blog, it is great. Joann
ReplyDeleteJoann, I've also thought we have a lot in common from your Dinet posts. I'm sorry you're having such a hard time right now. I hope we both have answers soon but until then how great that we have each other to sympathize with! This blog started as a way for me to vent and journal about what I'm going through! I've been shocked at the feedback I've received and how many people seem to have similar symptoms! Stay positive! I was doing some reading on pubmed this morning and was really encouraged by a couple of new studies. One of them was that they found a way to replicate POTS in mice. I feel bad for the poor mice (even though I despise them) but I'm excited at the fact that this has opened up a whole new world of POTS research! That should probably be a whole new blog post though! Ha! Thank you again for your kind words and I hope you have many symptom-free days in your near future!
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